 Improving the quality of life for Russian children with Down syndromeExpress News Downside Up
August 2010
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Dear Friends,
We do not know what the weather will be like in the last days of August, but we are confident that heat wave or storm, a few hundred people who care will rally on Vasilievsky Spousk, Red Square, on 22nd August to celebrate the fifteenth (!) Charity Red Square Bike Ride finish in aid of children with Down syndrome. Each year, the bike ride participants donate about 6 million rubles in aid of Downside Up Charitable Fund, and all the money goes for supporting children with Down syndrome and their families.
In this issue:
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For the first time in the 15 years of the Charitable Red Square Bike Ride we invite anyone over 14 years old willing to take part in the finishing line in Vasilievvsly spousk. In order to participate, please bring your own bike and helmet, come to Novodevichi Convent at 10-11am, make a charitable contribution in the amount of 1000 rubles and get a T-shirt. All the funds raised will benefit early intervention programmes for children with Down syndrome. At 11.30 you will cycle along Moscow river embankments to Vasilievski Spousk, the venue of finishing line celebration programme with the participation of celebrities and featuring a photo exhibition, children’s race, games and competitions. Tutta Larsen, Tatiana Lazareva, Diana Gourskaya, Anna Gorshkova, Prikliucheaniya Electronikov, DomisolKa, Deti Mari clowns and other groups and celebrities will be with us on that day.
If you wish to participate, please contact Kseniya Chernyavskaya by phone +7(499)367-1000 or e-mail ksenya@downsideup.org. If you cannot participate, but wish to support Downside Up programmes, you can make a donation here.
With all our hearts thank you!
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In our July issue we asked for your help in raising the funds for the summer camp for those families who finished Downside Up early intervention programmes. Thanks to your support we received 86,700.36 rubles for this new programme, while part of the cost was covered by the parents. Please read here comments of Masha’s father Valery Mezinov.
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69 new families contacted us in the period from 11th June to 30th July. 29 such families came to Downside Up Early Intervention Centre for free consultations of early development specialists. Our programmes have a global reach - we support the families from Moscow, Nizhni Novgorod, Tver, Kurgan, Penza, Kemerovo, Chelyabinsk regions, Saratov, Tatarstan, Buryatia, Zabaykal and others. The families learn about Downside Up programmesforum from several sources: the Internet, forum (Russian), friends and acquaintances, doctors in maternity hospitals, or geneticists. From the moment of their first contact with Downside Up the families receive our free assistance no matter where they live.
We are helping. Anyone can help. A donation can be made here.
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